The kids and I had a great day yesterday. With the exception of Josh's soccer practice - which was his first one back in about 8 weeks where he had no restrictions at all - we cleared our schedule for the day. Then we swam, made cupcakes, went to the store to buy junk food so we could have some good eats for our day, built a fire, played basketball, swam again. But my most favorite thing we did? We laughed. We laughed, all 5 of us, until our bellies hurt and our sides ached. (Bob is in Charlotte away on business this week.)
As we were all sitting around the fire the kids began to talk about what this whole experience with Sarah has been like for them. Sarah began to talk about her biggest fears and what she remembered from the day of her diagnosis. The kids asked her questions that they had been wondering about for a while. We then talked about what the future may look like in terms of finding a cure to restore the myelin on Sarah's optic nerves so that Sarah may see again. We looked up articles on-line of studies being done both here in the States and across the pond in the U.K.. I did not say too much while they talked. I wanted to hear about this experience in their own words. So, I just sat back and listened while they talked with each other about their memories of the last two years. When I was asked a question directly I answered it, but other than that the conversation was theirs to have. It lasted 30 minutes and then it was done. I think it was nice for them to talk freely about things.
After that we sat by the fire some more and chit chatted about other things. Then we all snuggled into my room and read some chapters out of the book Black Beauty. The kids had camped out on my floor. It was nice to have us all snuggled into the same room together. We needed that. It seems like our schedules have been so hectic for a while. To be able to take a day to reflect on our lives was an amazing gift that we all cherished.
Here is to HOPE for the future and what yet may come...
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